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High Risk result for Downs baby...Test different for Asians and Caucasians???

  1. #1
    Shenzhennifer is offline Registered User
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    High Risk result for Downs baby...Test different for Asians and Caucasians???

    I just had a Combined First Trimester Screening of Fetal Down's Syndrome in SZ at a private hospital. The results came back very bad for me. I'm 31, and my risk factor was 1:85, compared to normal minimum 1:250.
    I can't understand why at all, other than really bad luck, but obviously I want a second opinion as I don't necessarily trust this Chinese hospital. So I was recommended Beijing University hospital and I went today. It was a madhouse and finally I found an English speaker who would help me. She spoke to a doctor who REFUSED to re-test me because I'm not ASIAN (i'm white), and maintained that the tests were different for asians and caucasians.
    I never heard of this before and I think it's a load of &%*# actually.
    Has anyone heard of this?

    Also, I'm really upset at these numbers and this risk factor I was given. Has anyone had similarly poor numbers and if so, what did you do? I'm really stuck here in this country (on a tourist visa so can't hop and skip to HK whenever I want), and I feel so trapped and helpless.

    I really wish I lived in HK now, more than every other day...

  2. #2
    babydoll is offline Registered User
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    Hi, I had an OSCAR test here in HK, and it was also high risk for Downs (1:80s), however I was around 39 y.o. I'm not sure if it's different for Asians & Caucasions, but I then had a chorionic villus sampling to exclude Downs. Amniocentesis is also another choice.
    I think it's best if you can go to an obstetrician that has the knowledge and facilities to do the appropriate tests and interpret them for you.

  3. #3
    soon2bmom is offline Registered User
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    Expat medical clinic

    Hi, Jennifer, sorry to hear that.

    But why don't you go to an expat medical facility to get a proper exam? When I was living in Shanghai, I would never go to the local hospitals there, there are some clinics that expats normally go to (very expensive but usually the company insurance policy will cover the cost, the doctors there are usually westerners or Chinese who are trained in the west). The one in Shanghai is called Worldlink, maybe it doesn't have a branch in Shenzhen, but I'm sure there are other expat medical clinics there since there is such a big expat community in SZ. You should be able to find some ads in those free English newspaper or magazines. Or just google it. Hope this helps.

    By the way, I never heard of any difference in terms of testing for Down syndrome risk between Caucasians and Asians. I really seriously doubt this doctor's knowledge.

  4. #4
    bekyboo44 is offline Registered User
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    Hi- with my first pregnancy I also had the OSCAR test and had a high risk for downs- 1:60 (and I was 25 yrs old).
    My Dr. wanted me to have an amnio but I refused.
    At 20 weeks or so I had a fetal abnormality scan and while it can not 100% rule out downs, a specialist can let you know if the baby has any physical signs of downs- which my son did not.
    My son was born completely healthy.

    With my second pregnancy I refused to put myself through the test again, and just did the fetal abnormality scan which was fine, and daughter was born fin.

    It is worrying- but the test can be wrong, it is known to give 'false positives,' I would find another Dr and do the test again, or go for a fetal abnormality scan.

    Hope all goes well!

  5. #5
    Shenzhennifer is offline Registered User
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    Thanks for your help, you guys. I will have a re-test tomorrow at a different hospital and then there's nothing I can really do for a while. It's too early for an amnio and I don't know if I really want to do that.
    When did you have a fetal abnormality scan? What week? I had my last one at 12 weeks and they said FINE!
    Shenzhen is seriously underdeveloped. It looks flashy with it's Gucci stores, Starbucks and tall buildings, but it's still very much a developing place. All the expats here go to HK, somewhere I'm not really able to go to easily. Even more and more mainlanders are going to HK for the good services. Shanghai probably had nice services bc there was no place to escape to - the SZ market has to compete with HK which is FAR superior in every way.
    I really hate Shenzhen.

  6. #6
    megan2008 is offline Registered User
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    I know that there is some test, not sure what the technical name is, but is where they measure the space around the spine or brain. Sorry, I can't be more specific but I have heard of people having this test done at around 13 weeks. I would talk to your doctor about getting that done. Also, I have heard of people with much lower statistics 1:30 and their babies have turned out perfectly fine. I know that the results can be quite stressful but try to remember that it is only a statistical anaylsis and isn't concrete. :bighug

  7. #7
    carang's Avatar
    carang is offline Registered User
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    nuchal fold test... done through ultrasound.

    im guessing that it was this test plus a blood test that gave you the numbers....


    keep in mind it still means that it is 1 chance out of 60 that the baby could have down syndrome....it is NOT given.

  8. #8
    mummymoo is offline Registered User
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    Dear Shenzhennifer,

    Carang is right that both tests were probably used to determine your odds. Getting the test redone at another facility is an option, the other is getting hold of your tests and sending them overseas to have a second opinion as they can read the ultrasound/ interpret the tests for you in your home country. I know for sure that Mass General in Boston, Massachusetts has this facility but you have to pay for it.

    Finally, the last piece of advice I would have for you is that if you are having communication difficulties with your docotr, you need to change as the risk of miscommunication and an advierse outcome is heightened if there is not rapport between the two of you. Hope this helps.

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